As part of the DIPG/DMG Collaborative we have a dedicated site for families of the newly diagnosed.
Learn what to do after diagnosis, get the facts about Diffuse Intrinsic Pontine Glioma (DIPG) and find much needed support by visiting DIPG.org, a site hosted by the DIPG/DMG Collaborative dedicated as a resource for those newly diagnosed.
This site will help guide you through understanding this diagnosis, assist in choosing treatments as well as facilities familiar with DIPG patients. DIPG.org has the most relevant statistics substantiated by research and remains current because it is updated frequently.
Stefani and Steve Healey, founders of The Brooke Healey Foundation, have been in your shoes and understand the questions and concerns you have and the anxiety and fear you feel. DIPG.org will help, but if your research leads you to more questions or you need further clarification, reach out to The Brooke Healey Foundation at firstname.lastname@example.org.
We will do our best to help and provide any direction we can. Also, Stefani and Steve are willing to talk with you directly and be another source of support.
The picture of Brooke below, show her in different phases of her 8-month struggle.
Brooke prior to diagnosis
Brooke 6 weeks after diagnosis
Brooke 5 months after diagnosis
Brooke 6 months after diagnosis
Brooke 7 months after diagnosis
Brooke in her last weeks
Your donations go directly to help families dealing with pediatric cancer and supporting targeted research. Doctors in the field believe that finding a cure for DIPG may lead to a cure for all cancers.