Brooke Healey was a 4 year old girl from New Providence, NJ USA and had been diagnosed with a rare brain tumor called a DIPG.
DIPG’s are considered the worst type of tumor in the worst possible location. The tumor resides in the Pons sack located at the top of the brain stem. The Pons is responsible for all vital functions and any attempt to operate and remove the tumor has been 100% fatal. Radiation should help to shrink the tumor temporarily, but will not stop it from growing.
The Healey family was forced to seek alternative approaches to fight this battle on behalf of Brooke and did incur lofty medical expenses along the way. Since there is no clinically tested method of treating this tumor, other than the short term effects of radiation, insurance will not cover most of the costs of any treatments beyond radiation therapy.
In an attempt to find an answer for their daughter, the family had to explore clinical trials and considered going outside the United States. In both scenarios, travel and medical expenses were estimated to build upwards of $200,000 or more.
The Brooke Healey Foundation is a recognized 510c-3 that is trying to help families struggling with pediatric cancers, provide funding for research, and offer scholarships to local students that impact their communities.. All donations are tax deductible.
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